Cheryl Koehn, Founder and President, Arthritis Consumer Experts
Ms. Cheryl Koehn lives with rheumatoid arthritis and over her 30 years since diagnosis has become a national patient community leader, educator, patient research partner and published author. Ms. Koehn has dedicated her life to helping others living with arthritis. She is the founder and president of Arthritis Consumer Experts, Canada’s first national, patient-led organization that provides science-based information and education programs in both official languages to people with arthritis. She served as Co-Chair of the Summit on Standards for Arthritis Prevention and Care, was a volunteer member of the management committee of Canada’s first federally funded arthritis research institute (the Canadian Arthritis Network), was a consumer representative Board Member of the Arthritis Alliance of Canada and today serves as the patient representative on the Canadian Institutes of Health Research Standing Committee on Ethics.
As one of the world’s leading arthritis advocates, Ms. Koehn represents ACE by providing our members’ perspectives on arthritis health and policy issues to governments, private payers, employers, healthcare professionals, and media. She is a frequently invited speaker at national and international arthritis and health-related conferences. Ms. Koehn is the lead consumer representative on two global initiatives: the RA NarRAtive, a panel comprised of 39 healthcare providers and patient group leaders from 17 countries, and the Global RA Network, a coalition of 24 RA patient-led organizations from North America, Europe and South America.
Ms. Koehn is also an active patient research partner participating in numerous current research projects in Canada and internationally:
· ICON – Walk10Blocks (CIHR) – Lead, Knowledge User Group
· PRECISION (CIHR) – Lead, Consumer Core
· EQUIP-TJR (Vancouver Coastal Health Research Institute) – Co-Investigator and Organizational Partner
· OPERAS (CIHR) – Collaborator and Organizational Partner
· ANSWER 1 & 2 – Collaborator and Organizational Partner
· CIHR Project Grant (evaluation of multidisciplinary rheumatology nursing care for people with complex rheumatic diseases) – Co-Investigator
· Making it Work (CIHR) – Key consumer informant
In her leadership role at Arthritis Consumer Experts, Ms. Koehn has led the development of numerous information and education innovations to the arthritis community, including the ArthritisID and Arthritis ID PRO iPhone apps, Arthritis Broadcast Network blog, the annual JointHealth™ Arthritis Medications Report Card and Canada’s Best Workplaces for Employees Living with Arthritis Award, among many others.
Along with co-authors Dr. John Esdaile and Taysha Palmer, Cheryl Koehn authored Rheumatoid Arthritis: PLAN TO WIN, published by Oxford University Press.
Ms. Koehn lives in Vancouver, British Columbia, where she enjoys ocean swimming, cycling, and walking her faithful dog, Molly.